Drivin' Ms Sharon

Yes, I got out of this place today. Thanks to the wheelchair I was able to have a short ride out to the coach and go for a ride this afternoon. We had to pick up medicine and got some tacos for lunch while we were out. I never even got out of the van but it was nice to be out of the hotel. It was pretty warm outside so we used the AC and it was pretty comfortable. A front is coming thru tonight and supposed to be cooler for the rest of the week. My body chemistry has been so out of "whack" since my surgeries that I am usually freezing up here in the room. It was nice to be out in the sun today.
The home nurse came this morning to draw blood and change the dressing on my intraveneous line. Tonight Joe did my infusion by himself-he is quite the nurse. Hopefully we are getting some more supplies tomorrow as our first shipment is mainly depleted. These infusions will continue until Oct 31 and then I will only have to take a pill twice a day. My infectious Dr. says I'll be taking these the rest of my life.
Had to get my early this morning to meet the nurse but tomorrow we can sleep as late as we want to. I couldn't seem to get comfortable for the whole night last night so I slept half of the night in the recliner. Hopefully tonight will be better.
That's all for today and tonight.
Sharon

Sunday - A Quiet Day of Rest

It's 10:00PM and we've had a very restful day! Some might say "boring" but that about summarizes our status these days. We did manage to rearranged the furniture so that the recliner they brought if for us has a better place to fit and be used. We did manage to attend the services of Prestonwood BC again. Of course, it was by streaming video on the 'puter. Someone, no names provided, however, did manage to doze through the sermon! That just goes to prove that it's just like being there! [:D] Sharon is managing to do more things on her own! She has washed dishes and cleaned up the kitchen for all the meals today.

Thanks to the newly borrowed wheelchair, Sharon took a nice around the block ride while Bulli was getting one of his walks. She was rather glad to get out and see the world for a change. We also discovered that a sidewalk that Bulli and I normally use on his walks has no wheelchair ramps. That required a small backtrack and gave her a little longer ride! LOL Can't really say I'd given a lot of thought to how much those are really needed!

Almost time to go up and check on the laundry! Should be about dry by now! (Did someone say this was a day of relaxation?)

Cheers!

Joe

The Process Continues

Bulli likes a little "perk", too! He's discovered Blue Bell Vanilla and he's pretty sure he likes it!

Sharon, napping in her "Eskimo" mode! There's more depth in those covers than meets the eye!! LOL

This temp was more suitable and acceptable to her needs today! Not much for sunbathing, she sure enjoyed it today!

Our first Saturday in the Extended Stay Post-Op is now history! We made it with very little problems, if you discount Sharon needing to wear a parka and wolf fur hood all day! [:D] She is still in the "thin blood" mode and is about to freeze at the least bit of cool! We had her bundled up all morning and finally took her out to sit on the bench at the front door mid afternoon. She sat basking for a pretty good while and came in warm for the first time all day! Of course, that didn't last long before the warm clothing came out again. I have turned up the t'stat a little but it is so sensitive that it ranges from comfortable (my definition) to scorching (again, my definition!) with just a touch of the lever! There doesn't seem to be any mid-point!

Milestone day - Sharon put together lunch for us! This suite we're in is handicap designed and the kitchen is built for the use of a wheelchair. The dining chairs here are actually wheeled desk chairs (great idea, BTW!) and the first thing I knew anything was going on, she s aid "Lunch is ready!" She had scooted around on one of the chairs and put it together for us! We both were proud of this seemingly "small" accomplishment! I followed up later with my Pretzel coated Smashed Pork Chops!

Other big news of the day! MamaCache, one of our caching friends, borrowed a wheelchair from someone and brought it to us! Nice chair! This will give her a whole new horizon and I can get her out to the "warm-zone" much more often! I didn't want to get a script for one here and have to transport it back to Nashville (a space deficient thing in a little motorhome!) but we will get one once we get back. We can do that easily now thanks to this great act of friendship! Thank you so much, Sharon (MamaCache) and to the unknown benefactor who loaned it to us! I do regret that there was a total screwup at the desk and they sent you on a total wildgoose chase instead of giving you the proper room number!

We are seemingly settling in even farther into our routine. We just need to shift the infusion time forward a little so it doesn't end so late in the evening and we can get to bed a little earlier to be back on a more normal set of hours!

Cheers!

Joe

Infusion - No Confusion!

Every day seems to hold new adventures! Today was my first day to put on my Nurse hat and do Sharon's infusion on my own! Wasn't bad - at least the patient survived! I did have my practical tonight with a real nurse looking over my shoulder. Basic drill is something like Mix, Shake, Clean, Establish Flow, Clean, Connect, and Oh, lest I forget, DeBubble! Not necessarily in that order! Last night, the saline infusion solution was removed from the fridge just before we mixed and infused. She said it was really cold! Soooo, tonight we took it out of the fridge about three hours early to let it warm a little! OK, those of our friends who are in the medical field, you can quit snickering now! Just remember the old thing about Old Dogs and New Tricks!! [:D] Guess I'll be an old pro in a couple of days!

Managed to get a grocery shopping trip in today! Really stocked the kitchen with the basics so we can have some "real" meals for a change! So, what did we have for dinner tonight? - how 'bout a granola bar and some toasted nuts! Yup, sounds like a real meal to me! Actually, I don't think we officially had supper (dinner, if you prefer!). I got in and unloaded the groceries just before the nurse got her and we just sorta' munched while the infusion was happening! Don't worry, Mom, I got veggies, too!

Sharon is getting stronger every day. She's doing really well for two surgeries so close together such a short while ago. I can tell that the short leash prescription is going to need some strong reinforcement before too much longer. She has rested quite a bit today. The big highlight of her day is that the Extended Stay finally delivered a recliner for her to use. It's actually quite comfortable. It's quite "sleepable" if necessary and can be used rather nicely for that mid morning and mid afternoon naps. It should give her life a little more variety as that leash tightens!

Bulli has been funny during this infusion time! He's not quite sure what is going on with this thing his mom's hooked to. He has watched intently as the lines are connected and showed some concern about the whole thing! Even the nurses made note of how attentive he was to what was going on!

I do make note that, for once, it's not Texas that had a hurricane aimed at it's head this weekend! Good luck on the way to New England this week!

Cheers

Joe

A Day Of Settling In

We both slept well last night after it was finally time! A lettermark day, but it sure was busy! Today on the other hand, has been busy in its own way. Had a fairly late start but it remained at a relatively steady pace all day. Did laundry after getting breakfast for us with the full intention of going grocery shopping later in the afternoon! Never happened. The day just unfolded with a mind of it's own and never allowed silly things like that to happen! Our home nurse came in at almost 9:00 PM to start the infusion (and to give me my first full OJT session. Tomorrow, I get my "practical" as I give her the infusion for the first time. It is a simple procedure with about 20 steps, but I anticipate no problems.

Sharon has done rather well adjusting to Non-Institutional life! [:D] She does keep looking for the call button, but you can bet that I hid that sucker!! LOL She has been up quite a bit but has been shoo'd back to bed some also. We still don't have a comfortable chair for her to use yet, so we may have to make some other arrangements to make one available. She says she has felt better than she did while she was doing time over there! Hummmm! Wonder if she was beginning to feel like she was in the pen or something?

Actually she's getting around a lot better, her color is better, and she says she doesn't feel like she's in a fog now!

Tomorrow MUST include a run to the grocery store! Gotta' go check the drip line!

Cheers

Joe

Free At Last! Free At Last! Halleluyah! She's Free At Last!

Today was the day! It started slowly with starts and fits, a lot of hurry up and wait, and endedinamadhouseofactivitythatdidn'tevenstarttoslowdowntilaboutteno'clock! Whew! Glad they all aren't like that! It has been quite a day! We finally left the hospital at 3:00PM. To keep Sharon from having to negotiate the steps in Geovanii, Ron Leach did a great repeat performance of his last year life-saver! He volunteered to give her the first ride from the Presby to the Extended Stay. Thank you! Ron! That began her transition into civilian life again! [:D] Once here, we got her into bed and I went in search of the drugs that we need to administer her follow-on treatement! I thought that I would be crafty and kill two birds with one stone - I went to the Wally World SuperCenter just a few blocks away from the hotel! First stop, pharmacy! Drop scripts. Er, what was that again? You mean you DON'T HAVE THAT ONE? No, just give them ALL back to me. I'll go somewhere I can get them done at the same time! OK, grab a few groceries while here! OK Let's try CVS, I am already in their computer. Wait, what was that? You mean you don't have that one either? Maybe I can get it at the pharmacy at the hospital, it's just right across the street! Oh, they closed 15 minutes ago! OK, where do I have to go to get this? Do they have it as close as Waco (100+ miles south of Dallas, for you non-Texans!)? Anyway, the ladies at CVS came through - they have some of it at the Trinity Pharmacy! OK, where is that? Turned out it was "only" seven miles away through "go home" traffic! Not bad! OK you can fill the other two, right? OK I'll pick it up on the way back! After the drive, I found that they do not have the full amount but they do have a 5 day supply! This must be some rare stuff! I paid my co-pay share and thought, WOW! That's some expensive stuff! Only 5 day share and it cost me THAT MUCH FOR MY SHARE? Oh, that's for the whole 90 day supply! Not too bad! Wait, how much is the insurance part? Gulp! Sure glad I have THAT coverage! Won't say how much, but each pill is well more than my copay! And she's taking two a day!

While all this search was going on, I was getting a lot of phone calls or rather I was getting a lot of missed call dings! I finally figured out that, somehow, my ringer volume was dropped to zero and I only knew of a call when it was missed. If I didn't answer some of you, I apologize! It was purely unintentional. Also, concurrently, I was directing two different groups of home care people into the Extended Stay and trying to coordinate with ATMA to get to the ES at the same time they did. Somewhere, I think I almost talked to Wanda and had such a poor connection that we were going to talk later and never did. When I got back, Tim and Rhonda were waiting for me and we got into the room just in time to run head on into a Bulli that needed a walk pretty BADDLY! and the home care nurses who were to begin the infusion tonight and give me training on how to do it myself after one more OJT session. Tim and I had already agreed we were going to get food and bring it in for dinner. OOPS, Tim, I've got to get training! Tim and Rhonda graciously went for the food. We ate while the infusion thing was going on and the nurses were getting the paperwork done. The infusion took a little over an hour and had to finish before I could get the last of my OJT.

When all this was finished, Sharon looked at me and said, "Boy, am I tired! That wore me out!" I just smiled!

Thank you for dinner, Tim and Rhonda! I'm not sure we got that far. Was so glad you came by. Hope you find all well back home in Galveston!

Sure is good to be back under one roof! Looks like we'll have to stay about another two weeks from now. Have, I believe, two Dr's appointments. One with Dr Emerson and one with Dr Baum who was treating the infection in the joint!

Better get to bed. Have a mega-laundry to do in the morning. I won't even go into what I may have to reuse AGAIN before I wash this time!

Cheers!

Joe

Tuesday Evening, Sep 23

This looks like it could be our last night in the "Big House!" Dr Emerson told her yesterday that he felt confident that she could be released on Wednesday. He said nothing this morning to condradict that. She is rather excited at that prospect, to slightly understate her feelings! I'm sure that 21 days in that room has nothing to do with it! [:D] She keeps doing things that she was doing easily last week and gets frustrated that it's sometimes difficult to do them now. It's all too easy for us both to forget that little minor "thing" last Friday and that it was only 5 days ago!

I spent a bit of time this morning getting some things done to the room to make it ready for her. Simple little things you wouldn't normally think of. Things like raising the bed by 8 inches so she doesn't have to bend her hip too deeply. Making sure the recliner is high enough for the same reason. Actually, I spent a big part of the whole day doing that. Had to construct the bed riser from scratch with a sheet of plywood. Tried to get an extra set of box springs from the hotel but, while they did that last year with the queen size bed, they don't have the extra king sets to spare.

While I was in the process of getting all that done today, I had a bit of a twist myself! I was backing out of the coach and managed to step from the top step to the ground. That's a blind-sided three step drop. I didn't "fall" as in SPLAT! but did manage to roll hard to the ground! I might point out that I did fall pretty well on my most padded part of my posterior, but did roll on my left side and apparently bruised something in my left rib area. It is a bit sore, but like I told Sharon, it's nothing like having two operations on a body part in two weeks! Just glad that I didn't get more than a little sore!

We have a poor little critter on our walks (Bulli and mine!). Several days ago, Bulli chased a squirrel up a tree and I called him off (more like hooked him to the coach and pulled him off) and we went on about our business, er, make that HIS business! I noticed that the little guy was a little slow in getting out of the way. The next day, I saw it on the sidewalk ahead of us and it didn't seem to be in any hurry. I held Bulli until the little fellow made it to the nearest tree. Then, I noticed it was having trouble climbing the tree under the pressure of the white flash! I held Bulli back and watched the little thing. It was then I noticed that it had no use of its rear legs. It was motivating strictly by the front legs. Apparently, sometime ago, it was hit by a car or something, and lost its rear leg function. Today, while I was building the bed riser, I saw it crossing the parking lot to the hedges row in front of the dentist office next door to the Extended Stay. It was moving slowly, but seemed to have adapted to its front leg only life. I now know what Bulli has been hunting in the hedge behind the motel. He's known about the little ground bound thing since we've been here this time. I did see it climb a tree one day before I realized what was going on, but it was slow and barely got out of Bulli's way that time. I guess we need to catch the little fellow and outfit him with a pair of rear "wheels" like I've seen some doggies. Would probably have to motorize them so it could climb trees!

More later!

Cheers

Joe

Monday Evening - Things Looking Up!

Sharon, as you might have noted, was up EARLY today and was none worse for the wear! I got over mid morning and found her still sitting up in the recliner. Actually, I believe she had been back to bed in the meantime! She was having some "discomfort" during the day and asked for meds for it late afternoon. Overall, though, it was definitely a big "UP" day!. One thing that helped that was that when he came on rounds this morning, he told her he believed she could go "home" around Wednesday. "Home" in this case means, of course, the Extended Stay. If Wednesday is indeed the magic day, we'll plan on leaving here on or around the 3rd of October. That will give us almost 10 days post hospital for things to settle out into a non-institutional setting. Considering she went into the hospital on the 4th of Sep., that's a stay that is much more than adequate for any of us to enjoy a hospital stay.

You know you've been there too long when the staff just drops by to see how you're doing, even if you're not in their area! We sure have met some super, dedicated caregivers here! They have added greatly to the "pleasantness" of this long a stay. I can't say too much about how great the service is that they provide.

I'm having to spend some time tomorrow getting our place here ready for her to come out of the hospital. We're going to have to raise the bed about 6 inches so that she can get in and out of it. She needs to be able to basically sit onto the bed at just under, how do I say this, butt level! Any lower and it places too much stress on the spacers and the incision. I also have to have a recliner brought in to give her a place to sit that she can get out of. The same criteria applies to the chair. More than likely, we'll have to put a spacer under it as well to get that same height. The manager is helping with these tasks, as far as he has resources and items available.

She's ready, I'm ready, the leg's almost ready! Let's Roll!

Cheers!

Joe

4 AM????

What in the world am I doing up at 4 AM? I'd rather not be but sleep just wouldn't show up at that time. It was such a shame to waste such a great period of time: no pain, temps in room were just right, stomach wasn't upset-what great conditions. So, here I am at the computer to wile away the hours to daybreak when things start happening around here. Those of you who have had the privilege(?) of an extended hosptial stay know that there are a bazillion reasons why your room door can get opened and disturb your rest. In fact, let's just turn that into:
SHARON'S TOP 10 REASONS FOR A HOSPITAL ROOM DOOR TO BE OPENEND(ESPECIALLY IN THE MIDDLE OF THE NIGHT):
10-to fix the drip in the sink
9-to pull the shades so the sun won't come streaming in
8-t0 change out the menu listing on the bulletin boad
7-to dump the used needles box
6-to hunt for the clipboard that can't be found
5-to bring new sheets in for the bed
4-to bring in a fresh dressing gown for the morning(couldn't have been in with the linens)
3-to check out the "beeping" IV pole
2-to bring another blanket as the room is cold enough to hang meant

#1 reason for a hospital room door to be opening(especually in the middle of the night):

TO ASK YOU IF YOU NEED SOMETHING FOR SLEEP

Now I will turn on the TV and catch up on the latet news.
Sharon

Sunday Evening - Have had better days!

Sharon has not had a particularily great day. Actually, it wasn't bad considering it was only two days out of surgery, so close on the heels of the other one! What made it seem not very good was the fact that yesterday went so well. Several things probably contributed to that. She was completely unplugged from all the "surgical hookups" and she got out of bed for the first time. Although she had a good meal yesterday, her system really wasn't fully ready for "big time" meals yet. And, one of the pain meds apparently upset her stomach to the point that she "ralphed" while she was eating lunch. That, of course, took any desire to eat totally away! (Imagine that!) One of them also made her really drowsy the whole afternoon. In fact, we both dosed through the afternoon - I in the recliner and she in the bed. She did have a baked potato for supper later in the afternoon and that seemed to be rather good.

We went to church this morning via computer streaming feed from Prestonwood BC. Seems strange to look out the window of the room and see the church from the outside while you're in the middle of the service! Had two or three visitors from Prestonwood after church was over.

We look forward to a better day tomorrow!

Cheers!

Joe

Oh, yes! Both the Titans (our home team) and the Cowboys (our other home team) had pretty resounding wins today.

Saturday - 2nd Day is PROGRESS!

I came to the hospital a little late today and found a bright, cheery, almost perky Sharon in absolutely great shape for someone who was only about 18 hours out of some rather large surgery! She did have a pain shot a little after I came in and was "droggy" (may not be a proper word, but describes is perfectly!) but was otherwise in the best shape I've seen her at this stage post-op! Now that I think about it, I really, really wish I didn't have reason to know that!

She even ate quite a meal tonight. She ordered Herb de Provence Pork Tenderloin with Potato Cake and Apple Slaw, a side salad with Ranch dressing, and Walnut layer cake ala mode! Hmmmm. Hope she won't expect that kind of cusine when she goes home! [:D] I can do pretty well on a big pot of chili or a pretty mean omlet, but this herb encrusted stuff I'm not really into!

We have had three visits today from Prestonwood BC. They are so appreciated and help the morale and spirits more than they will ever know! Thanks!

Not much else to say tonight. She's doing great with great spirits!

Cheers!

Joe

Oh, yes, Mike! Thanks for the reference! To finally pass the final, I'll need to do a little more work to use in the practical. Are you available?

Hip! Hip! Hurray! Friday, Sep 19

It's almost 8:00PM and this is the first time to sit and bring everyone up to date. Sharon's hip was reopened this afternoon around 3:00PM and the old spacer and the old allograft (cadaver bone splice) were removed. Dr Emerson did basically two debriedments (scrubbing and cleaning) while in there just to make sure that they had removed all traces of the fungus that may be there. He said that the tissues and bone looked pretty good for a re-installation of a new prosthesis when they are as sure as possible that no more traces show up in the lab results. He plans to keep her in Presby for at least a week and wants us to hang around for a week to ten days after that so that they can track locally the "counts" that measure the demise of the fungi. After that we can head back to Nashville for a couple to four months before we come back to get the final prosthesis installed. As per usual, Dr E had a quote of the day: "We are going to keep her on a short leash!" Last year, his motto was "Calm and Still!" I think "short leash" implies that and more. We will go into a "no big crowds" mode when we leave the hospital to make as sure as we can that she stays "clean" for the next op! I hope I can live through that! More than likely, we'll even hire the house cleaning done so that she won't have that to stretch the leash! When we go grocery shopping, she'll likely sit in Geovanii and I'll go through the stores so she isn't exposed to whatever may be going around at the time! Thank goodness we have Geovanii. As an extension of the house, it is going to make her life a lot more pleasant!

She is still heavily sedated and isn't likely to be much more out of it until sometime tomorrow. I plan to stay here as long as I can throughout the night so I can make sure she gets what she needs to make her comfortable. The nursing staff here is absolutly great but they carry a pretty heavy patient load. I'll help augment that staff tonight!

Cheers! Keep her in your prayers for a quick recovery from this op!

Joe

Thursday Evening, Sep 17

Thursday, one day pre-op and all systems go. We both had somewhat of a kick-back day because neither of us slept very well last night! Funny how that works, we were in different locations and both had the same sleep difficulties! Not sure what that means! I was up very early so I went in search of a place to actually sit down and have breakfast brought to me! Seemed like a rare treat, but I had to get out of the "pretty people" part of Plano to find such a place! Great little place that does a mom and pop kind of business! Been a long time since I've had eggs, hashbrowns, biscuits and Chicken Fried Steak for breakfast! CFS is really a Texas thing that I've never gotten over! While out, knowing that Sharon wanted a light meal day, I dropped by La Madeline and got her a "fruit cup". She did rather enjoy it, even if she did offer me the shell that was left after she had taken the "good" stuff our of it! Thought that was downright generous of her! [:D]

She is in great spirits going into this next op phase tomorrow. We took a wheelchair ride for about an hour and a half mid afternoon. We went all the way out to where I parked Geovanii and she and Bulli had a nice visit. He didn't even have to hunt for a while. Sharon gave him a string of string cheese and that kept his attention for a while. I gave her a tour of the hospital in places she hasn't had the chance to see in all the time she has spent here. We went down to the public cafeteria and I had a bit of lunch while she has some apple sauce that she said tasted devine! She seemed to thrive on the fresh scenery. I guess that's a real treat, indeed, for all she's seen for the most part, is the inside of her room for 11 days! I'd probably be climbing the walls by now. The nurses and staff that came in for evening shift are now on their second rotation since she's been here! She feels like that is way too long!

She is scheduled for surgery around 1:00 PM and it should last not longer than a couple of hours. I will not likely post a blog in the AM but will post after surgery and I talk to Dr Emerson and Dr Barrington.

Thanks for your prayers.

Cheers!

Joe

Wednesday, Sep 17 AM

I got up early this morning so I could be over at the hospital when Dr Emerson came by on rounds. In his world, that is EARLY! I was over there before 5:30 and he came by not a whole lot later. He is pleased with the looks of the incision and ordered the staples removed and be replaced with SteriStrips. That will let that area settle down before he opens it up again! Seems strange, doesn't it!

He is planning a mid-day Friday operation. That will let he and Dr Baum work out the proper approach. Although they have slightly different opinions of the impregnation of the antifungal, I fully believe that Dr E will prevail and use a compromise between the two stances on that impregnation. After talking with him this morning, I believe he is probably on the right track, with probably a smaller dose of impregnation than Dr Baum had counted on. Refer to my post last night for her opinion. Dr E feels that it MAY reduce the need for the infusion in her pickline. At any rate, I feel confident that they will do the right thing to get the job done.

He feels like she will be in the hospital around a week to 10 day post-op and will then be able to head home. He used some words like "extremely limited mobility", calm and still, around the house, and some others that mean that we are not very likely to range very far from the home base. On the other hand, the View is also our home.....................................! That will probably let the scenery to change somewhat in the picture window! Hey, It could be a lot worse!

I'm getting to play hooky this morning after rounds. I had to make a grocery run and do the laundry! This is my part of the "relaxation" phase! I may even go out and find a big old steak somewhere in the next couple of days!

That's the jist of the good news today, thus far! We have a schedule through a return home! Can't ask much more than that at this point!

Oh, yes, Mike, I'm thinking about taking the test to get certified in my "other" role as official Nurse! [:D] I think I've already had the practical!

Cheers!

Joe

Time Marches On - some days better than others

Sharon had a pretty rough morning today. We "partied" until late last night and I believe she suffered the worse for it! Actually, we watched Monday Night Football and I stayed until the game was over. She did some paperwork, worked on the computer for a while and may have watched a couple of minutes of the game too. She had wanted me to come later and spend some of the later evenings with her. She was getting to bed too early and couldn't sleep. Last night disproved that theory in spades!

She did have a much better afternoon and evening. She perked up and actually felt rather good. I had dinner with her (the Beef Tip Stroganoff wasn't bad at all!) and stayed for a little while afterward. Actually, I want to get over there in the morning so I can be there when Dr Emerson comes by on rounds. He is likely to give us the next surgery schedule for the next step tomorrow and I would like to be there to get a few answers to some basic questions from him. Dr Baum came by this afternoon and said that she has come to the conclusion that they don't want to infuse the new spacer with the fungicide as originally planned. In lieu of this imbedding, she wants to continue the drip through the Pick line (super IV line!) instead. This is because there is no records of this having been done before. She is sure it has but there is no body of evidence to tell what works and what doesn't. She doesn't want to take the risk of experimenting with Sharon's case without some precedence or protocol having been set. There are just too many unknowns!

Had a nice visit with Ken Casto from Prestonwood BC again. Again, we appreciate these visits and have enjoyed getting to know Ken.

The Extended Stay is almost filled with evacuees from IKE. Many still don't know what the condition of their homes is. Word is beginning to slowly get to many of them but not to all yet. That just has to be a devestating feeling not to know. They feel pretty much in limbo and unable to make plans until they can get more information.

More later after the operation decisions are made.

Cheers

Joe

Time Marches On!!!!!

It's hard for me to believe that I feel so well and only had surgery a week ago. I get myself in and out of bed now when the inflatable booties aren't on my feet and I walk around the room just a little. Today Joe took me outside in the wheelchair and then he brought Bulli over to see me. That little rascal said a quick "hi" and then dug his nose into some bushes to see what varmits had been around. It felt so nice to be outside these 4 walls and to feel the nice breeze. IKE came thru with a "tinkling cymbal" on Sat. so now the weather is really nice. Tonight, in fact, is to be coolest in several months. We have a huge window here in the room and I like to look outside to see the lights or the birds or the planes flying by.
We've spent the evening watching the Dallas Cowboys football game. We were avid fans while we were living in TX for 14 years and still have a place in our hearts for them since we moved away.
My surgery could likely be as late as Fri. because my Doctor's are still getting their heads together. Stay tuned for more news as we know it.
Sharon

Monday Madness - Well, maybe not!

Dr. Baum made a visit today. Sharon is treading on thin ice with the blonde jokes with the one doctor that is crutial to the solution to her fungal challenges! The sign between them is one example!

Today is when a lot of things have begun coming together. Dr. Baum was by early this afternoon and and verified some of what we can expect in the coming weeks - not as a hardcore, fixed in concrete schedule but general estimates of what they expect at this time. First, she has to finish determining just which antifungal they need to use to mix with the spacer material. This is a fine line, balancing the proper material, in the proper strength so that it is strong enough to do the job and not so strong that it causes unintended consequences. She's sure some of her collegues have been there before and wants to tap that experience as they go into largely uncharted territory. When asked how long she believes the drip infusions will go on, she feels like 6 to 8 weeks is a good extimate. They have a lab and home infusion agency here that also has a outlet in Nashville. They will set up proper care through that group to support Sharon's needs when we get home. Did you notice that, for the first time, we have a positive reference to returning home? We suspect another three weeks here, providing all goes will with this next procedure. That will be done one day between Wednesday thru Friday. I suspect it will likely be later in the week, most likely Friday. Of course, I'm NOT on the decision making side of the table, so my thoughts are strictly non-consequential! [:D] I'm largely basing that on the time for proper fungicide to be researched and decided.

Dr Emerson keeps shaking his head with the unbelieveable turn of events thus far. He has said several times that he wishes she would quit being such a challenging patient! Hmmmm! Think we'd kinda like that, too!

We keep having daily visits from Prestonwood BC deacons. They are a very welcome part of the day. It's great to have a friendly, non-medical face show up at the door and stop in with a pleasant visit. Thank you so much, Prestonwood, for being so diligent in your ministry!

I'll be shifting my "at-the-hospital" times a little. Sharon needs the help and company late in the afternoon and in the early nightime. That is the time that the staff is somewhat scaled back and she needs the extra company to help keep the night from being so long. That means that Bulli and I will probably shift our day slightly to the west a little so we can get his scheduled shifted too.

Sharon wanted a something different for lunch/dinner today. Already she as been through the hospital menu and, while the food is great, her enthsiasm for it has already dwindled to the near zero level. I dropped down to Cowboy Chicken and brought back a batch with sides for our whatever you call the meal at 3:00PM. It was rather tasty, even for me that normally would rather have a live cow than a fully cooked chicken! They have pretty good sides as well, and their creamed spinach is right up there with the best! Pretty soon, she'll want me to go get another "fruit cup" from La Madaline! Hmmm! May not be a bad idea, at that!

I was supposed to go over to an informal geocaching dinner with some of the local folks tonight, but I believe that with Sharon's desires for evening company, that I'll have to pass this time. Was looking rather forward to that but we'll do what we have to do!

A Day Of Rest?

Sharon has a day a the "spa" ala hospital style! Nothing quite like a good shampoo!

Prestonwood Baptist Church as seen from the window. Could see the church as we worshipped with them! Yes, that LARGE building IS the church! We're about a mile and a half from it!

Sharon with the choir during the service!

Sunday is supposed to be a day of rest and that is just exactly what we are doing BUT that's all we've been doing for a week now. Lots more of it to come.

Last night was probaby the best night of sleep I have had since being here. I was actually able to get in 3 periods of longer sleep. For those of you who have had to spend time in a hospital, you know that people are in and out of your room all night so you just can't pull the covers up over your head and sleep until the morning.

My Dr. wants me to keep my hip quiet so basically all I am doing is lying in the bed and getting up to the bathroom and/or sitting in a chair. Today he added that I could look out in the hall-wow! we're really progressing. He says we are just taking things a day at a time and we're right there with him.

Have a big picture window here in the room that looks over the city of Plano and we watched as remnants of hurrican IKE were passing thru. It didn't end up being very bad here-some rain and wind for a while but that was all.

Joe got here this morning after I was all cleaned up and sitting in the chair. He brought the computer so we went to church via computer broadband. We have visited Prestonwoood Church several times when we have lived here or came thru last year. They have a wonderful service that you can enjoy in your living room or in our case, a hospital room. Joe was stretched out in the recliner and I was here in the bed so how was that for a worship service? I'm on the 8th floor and we have a beautiful view of the church in sight.

Not much more to report from my side today. Joe will keep you up with the medical details-he's alot more "wordy" than me.

Love ya'll

Sharon

Eureka! They found IT!

Sharon with the flowers from Aunt Kay! These are the only flowers she's had during any of the trips to Plano! They were beautiful, Kay! Thanks!

We have great news this morning! The internal medicine doctor came by just after I got to the hospital with what turns out is good news! Not good news as in "there's absolutely nothing wrong!" but good news in that the same mold has been identified in three different cultures they were growing! What makes that so great is that NOW we have a target to shoot at and they can properly treat the real cause. Thank you, Father!

Dr Emerson came in on rounds before I got here, but outlined what he knows at the moment. Plans are to go in to the hip and remove a little more of the installed components to be replaced with the fungicides that can be mixed with the spacer construct. This is rare treatment and research has to be done on the proper mix of "stuff" to get the job done. I think I said something about this in the blog late last night. This turn of events brings us closer to the "Big Fix!" Sharon made the comment this morning that the thing that is keeping her going is that just ahead on the "other side of all this" is the life and mobility that we have known! How's that for a positive, let's this this done attitude?

Thanks for all your expressions of support today. You know who you are and I am in deep gratitude for your love and care.

Friday Night Entries – Long Day

I’m sitting here back in the Extended Stay after a pretty long day, both in hours and emotionally. I did manage to leave for a while this afternoon and come back to the hotel and do a couple of loads of laundry, but for the most part, have been with Sharon at the hospital. We had a very nice visit from one of the deacons from Parkwood Baptist Church. Ken’s arrival was very welcome and he provided some comedic and devine relief that was much needed at the time! Thanks, Ken!

Ken was there, actually, when Dr Baum came for her visit. We were discussing some of the difficulties that Sharon was having when she came in, and he welcomingly stayed while she explained where we stand with the lab cultures and some of the things that are changing and a little of where we need to go for a good outcome. They have finally grown something in the samples that were taken during surgery last Monday. They have found a mold growing that is not exactly what they were expecting. She and Dr Emerson are going slowly on this until the slower growing cultures are finished so that it can be verified as the cause of the difficulty. When and if that culture is verified, the treatment will change to the antifungals that are required. There is much more to follow on this, for there is a lot more involved than I can outline here yet. The simplified version is that it looks like Sharon will have another operation sometime this coming week to do two things: 1. Remove more of the other components that are most likely infected by the mold and 2. replace the spacer that is impregnated with anti-bacterial material and replace it with one that contains the anti-fungal materials. Number 1 is the primary cause, but number 2 is a pretty big player init as well. We don’t know the schedule yet, and even the doctors are not sure what the timing will be. The major cause for the uncertainty is largely because we are working in unknown territory. What we have here is a very very rare situation and there is not a set protocol to work with. Both doctors are very contentiously researching the possibilities for successful treatment.

Sharon is supposed to have a more “mainline” shunt installed tonight so that the hardcore drugs can be inserted. The two IV’s that were installed earlier this week had to come out today because of their limited use time. Four days was all that they can stay in. The new one can stay in basically an unlimited time. That will make the coming days a much more pleasant experience. (that really sounds strange, considering what we know is coming!)

Since I’ve been back to the Extended Stay tonight, I’ve met two groups of folks who have come up from Houston to move out of the danger zone of Ike. They both asked if they could pray for Sharon and her condition. Of course, I replied in the positive! I ask your prayers, too, please. Tonight has been, in some respects, our darkest hour. My heart aches for what Sharon must go through before this is laid to rest. She, on the other hand, is saying, “Let’s just get it on and get it over with!” She’s one tough girl! Crying Uncle is just not in her nature. We now know that there are at least two more operations before it is finished. Don’t know the timing. I expect to be back in Nashville for some time before the second one of those is done.

Cheers

Joe